©2018 by The vEDS Collaborative.

THE VEDS COLLABORATIVE

Driving Patient-Centered Research in vascular Ehlers-Danlos Syndrome

 
 

ABOUT

The vEDS Collaborative is a group of patients, family members, researchers, and clinicians dedicated to developing a patient-centered plan for scientific research to improve the management of vascular Ehlers-Danlos Syndrome and increase the quality of life for all those impacted by the disease.

 

OUR ACTIVITIES

Connecting Patients across the vEDS Community

 

RESEARCH

Engaging Patients in the Process

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EVENTS

Bringing Together the Community

CONNECTIVITY

Connecting Patients and Advocacy Groups

 

2018 VEDS COLLABORATIVE MEETING BRINGS TOGETHER THE VEDS COMMUNITY

On July 27, 2018 vEDS patients and researchers came together in Seattle and Online to educate patients and prioritize research topics.

CONTACT THE VEDS COLLABORATIVE