©2018 by The vEDS Collaborative.

DNA Strand


Patient Centered Research in vascular EDS

The vEDS Collaborative is dedicated to supporting the vEDS community in driving patient-centered outcomes research (PCOR) to improve the management of vEDS and increase the quality of life for people impacted by vEDS.



Turning Interest Into Action

To create and sustain a collaborative network of diverse stakeholders, individuals, and organizations...

...to understand patient needs...

..and determine the research methods best suited to study the adverse health implications associated with vEDS.