©2018 by The vEDS Collaborative.

DNA Strand

OUR VISION

Patient Centered Research in vascular EDS

The vEDS Collaborative is dedicated to supporting the vEDS community in driving patient-centered outcomes research (PCOR) to improve the management of vEDS and increase the quality of life for people impacted by vEDS.

 

OUR MISSION

Turning Interest Into Action

To create and sustain a collaborative network of diverse stakeholders, individuals, and organizations...

...to understand patient needs...

..and determine the research methods best suited to study the adverse health implications associated with vEDS.