HOW TO ENROLL
If you are interested in taking part in the study or would like more information, please contact the study team at (206) 353-3076 or . You can also click on “I am interested in this research study” here. We are also collaborating with EDS.org, the Marfan Foundation, and Backpack. If you enroll into any of these registries then you can also tell them you want to enroll into vEDS Collaborative Study.
We then will mail or email you your consent packet. Within two weeks, a University of Washington study coordinator will contact you to discuss this study in depth prior to signing any consent documentation and ensure that all of your questions have been answered. If you are eligible and would like to join the study, we will talk you through signing and sending back the forms included in this packet.