vEDS Videos, Images, and Documents
VEDS COLLABORATIVE WEBINAR
Video describing the vEDS Collaborative and a preview of the August 2019 research meeting
DR. SHALHUB AT THE PACIFIC NORTHWEST VASCULAR SOCIETY
Dr. Sherene Shalhub from the University of Washington presents regarding the vEDS Collaborative and results of the 2018 patient survey.
MEET DR. PETER BYERS AND DR. SHERENE SHALHUB
An introduction to vEDS Collaborative leaders Dr. Peter Byers and Dr. Sherene Shalhub of the University of Washington by Katie Wright.
Available for Download
Background for Research
In planning for the 2019 vEDS Collaborative Meeting, the team created workgroups arranged by research theme that vEDS patients prioritized during a 2018 survey.
Each workgroup reviewed the literature for each theme and developed
factsheets to determine the current state of prior the research conducted, pragmatic feasibility, and
study design concerns to address when studying each question.
These Factsheets summarize the current evidence findings & gaps, and identify priority research questions. The Factsheets also present recommendations for the design and conduct of future research on the topics of:
1) Barriers to vEDS Care,
2) Exercise and vEDS
3) Pregnancy and vEDS
4) vEDS Screening and Surveillance
5) vEDS Treatment