©2018 by The vEDS Collaborative.

VEDS RESOURCES

vEDS Videos, Images, and Documents

 

VEDS COLLABORATIVE WEBINAR

July 2019

Video describing the vEDS Collaborative and a preview of the August 2019 research meeting

 

DR. SHALHUB AT THE PACIFIC NORTHWEST VASCULAR SOCIETY

November 2018

Dr. Sherene Shalhub from the University of Washington presents regarding the vEDS Collaborative and results of the 2018 patient survey.

 

MEET DR. PETER BYERS AND DR. SHERENE SHALHUB

July 2019

An introduction to vEDS Collaborative leaders Dr. Peter Byers and Dr. Sherene Shalhub of the University of Washington by Katie Wright.

 

OTHER RESOURCES

Available for Download

 

VEDS FACTSHEETS

Background for Research

In planning for the 2019 vEDS Collaborative Meeting, the team created workgroups arranged by research theme that vEDS patients prioritized during a 2018 survey.


Each workgroup reviewed the literature for each theme and developed
factsheets to determine the current state of prior the research conducted, pragmatic feasibility, and
study design concerns to address when studying each question.

These Factsheets summarize the current evidence findings & gaps, and identify priority research questions. The Factsheets also present recommendations for the design and conduct of future research on the topics of:

1) Barriers to vEDS Care,

2) Exercise and vEDS

3) Pregnancy and vEDS

4) vEDS Screening and Surveillance

5) vEDS Treatment