THE VEDS CLINICAL TRIAL SURVEY
Complete the survey to have your impact on vEDS research
The vEDS Collaborative is actively developing the first US clinical trial of treatments for vEDS. The planned trial will help patients and their doctors understand what treatments are most effective. This survey is meant to gather information on what is important to the vEDS community and will help us design the trial to meet community needs. Your responses to the survey will help our team understand what treatments are currently being used to treat vEDS and will help us ensure that we design a trial that people with vEDS will feel comfortable participating in.